"zolgensma"

Nara Lokesh helped facilitate a ₹16-crore Zolgensma gene therapy for a baby with SMA Type-1 in Kurnool, bridging funding gaps and coordinating approvals, enabling timely life-saving treatment with support from public donations and medical teams

In addition to Hemgenix, there are many other costly drugs available in the market that seem to be almost unattainable. Read on to know more.

As I sat on the creaky hospital bed with my 1-year-old Ayansh in my arms, tears began to slip from my eyes. Tears of fear and anguish, tears of helplessness and guilt, and finally, tears of shame. All the pent up sorrow and despair burst through my eyes like a broken dam as I trembled […]

Spinal muscular atrophy is a genetic disease affecting the part of the nervous system that controls our ability to move our muscles voluntarily.

The girl, Vijaya Durga, born in March 2020, is fighting the biggest battle of her life even before she turned one