Sangareddy: Rs 16 cr required for saving 11-month-old baby’s life
The girl, Vijaya Durga, born in March 2020, is fighting the biggest battle of her life even before she turned one
Sangareddy: A poor couple from Siddipet district who even struggle to make both ends meet need Rs 16 crore to save their 11-month-old daughter suffering from a very rare genetic disorder.
The girl, Vijaya Durga, born in March 2020, is fighting the biggest battle of her life even before she turned one. Her father Karri Kiran Kumar Yadav, who hails from Gajwel town in Siddipet district, lives at Isnapur near Patancheru. Kiran works as an outsourced employee with the State Treasury Department.
Speaking to ‘Telangana Today’, Kiran said he had taken his daughter to a private hospital since she was not able to keep her head straight even after six months. After tests, the doctors informed the parents that she is suffering from a rare genetic disorder called spinal muscular atrophy type-1 (SMA Type-1). By the time she was diagnosed with the disease, Kiran said they had spent Rs 4 lakh on treatment and tests. Doctors told them that she needed to be given a rare injection — Zolgensma — which costs Rs 16 crore and needs to be imported from the US. Unless the injection is given before Vijaya Durga attains two years of age, doctors said her survival would be difficult.
Since it is impossible for the couple to raise such a huge amount, they have been running from pillar to post seeking help from government and philanthropists.
Sunitha, mother of Vijaya Durga, appealed to the government and philanthropists to help them save their daughter.
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