Rare disease conference held in Hyderabad on eye disorders

The Indian Organisation for Rare Diseases, along with LV Prasad Eye Institute and Rainbow Children’s Hospital, organised a scientific conference in Hyderabad to mark World Rare Disease Day 2026. Experts discussed gaps in diagnosis, genetic services and care for rare eye diseases

Hyderabad: The Indian Organisation for Rare Diseases (IORD), in collaboration with LV Prasad Eye Institute (LVPEI) and Rainbow Children’s Hospital, marked World Rare Disease Day 2026 in the city with a focused scientific conference titled ‘Raise the Awareness – Rare Diseases’, highlighting rare diseases in ophthalmology.

The conference, which featured the release of the IORD Annual Report 2025 and a screening of a rare disease awareness short film “I am not Alone” directed by filmmaker Muralidhar Indrakanti, highlighted critical gaps in diagnosis, genetic services and comprehensive care for rare eye conditions in India.

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Prof Ramaiah Muthyala, President and CEO of IORD, said rare diseases represent a significant yet under-recognised public health challenge in India. He noted that India is home to a large number of patients with rare diseases due to its large population, reflecting sheer population volume rather than disproportionate disease frequency.