Nara Lokesh helped facilitate a ₹16-crore Zolgensma gene therapy for a baby with SMA Type-1 in Kurnool, bridging funding gaps and coordinating approvals, enabling timely life-saving treatment with support from public donations and medical teams
Foundation, a non-profit organization dedicated to creating awareness about Spinal Muscular Atrophy (SMA), will be hosting the 2nd Edition of the 'Run/Ride for SMA' on August 4 at the Gachibowli Stadium.
As I sat on the creaky hospital bed with my 1-year-old Ayansh in my arms, tears began to slip from my eyes. Tears of fear and anguish, tears of helplessness and guilt, and finally, tears of shame. All the pent up sorrow and despair burst through my eyes like a broken dam as I trembled […]
