Hyderabad: Parents urge for help to save their kid from rare disease
Several celebrities do their bit to raise Rs 16 crore for the expensive drug for 2-year-old Ayaansh
Hyderabad: Hyderabad-based couple, Rupal and Yogesh Gupta, has appealed to public to help them raise Rs.16 crore for their son’s Zolgensma therapy.
Two-year-old Ayaansh Gupta was recently diagnosed with Spinal Muscular Atrophy (SMA) Type 1. A rare genetic disease that attacks the baby’s nerves and muscles, SMA Type 1 can make it extremely difficult for the child to carry out basic activities like sit up, lift their head, swallow milk, and even breathe.
Ayaansh’s crowdfunding campaign on ImpactGuru.com has so far raised over Rs 6.30 crore, cumulatively contributed by over 29,000 donors. Several celebrities, including Dinesh Karthik, R Ashwin, Washington Sundar, Alia Bhatt, Kartik Aaryan, Vicky Kaushal, Shraddha Kapoor and Sara Ali Khan have come forward to support the child, a press release said.
Amongst the donors is actor Rajkummar Rao, who also put up an Instagram post which read, “Ayaansh needs world’s most expensive drug. You are his last hope! Link in Bio to donate. Please donate as he doesn’t have too many days left for this injection. I’ve done my bit, it’s your turn now.”
SMA is currently the leading genetic cause of infant death worldwide, and it affects one in 10,000 babies. One can donate for Ayaansh’s treatment at https://www.impactguru.com/fundraiser/donate-to-ayaansh-gupta
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