A therapy costing Rs 5 crore is the only shot of life for 10-year-old Mahima Sagar with Spinal Muscular Atrophy (SMA), a rare genetic disease, in Hyderabad. SMA is a progressive neuromuscular disease caused due to defects in the SMN1 gene. The affected children develop muscle weakness involving upper and lower limbs initially, but over […]
Hyderabad: A couple, whose 14-months-old child Ellen is suffering from a severe form of Spinal Muscular Atrophy (SMA Type 1), is trying to raise funds for an expensive treatment through crowdfunding platform Impactguru.com, a press release said. The Telugu-speaking husband and wife, Praveen Rayapudi and Stella, are aiming to raise nearly Rs 16 crore for […]
Hyderabad: A gene therapy costing Rs 16 crore is the only shot of life for a 14-month-old baby girl with Spinal Muscular Atrophy (SMA) Type 1, a rare genetic disease, in Telangana. Baby Ellen’s father Praveen, a resident of Bhadrachalam, works as a medical representative. He along with the toddler’s mother Stella has set up […]
As I sat on the creaky hospital bed with my 1-year-old Ayansh in my arms, tears began to slip from my eyes. Tears of fear and anguish, tears of helplessness and guilt, and finally, tears of shame. All the pent up sorrow and despair burst through my eyes like a broken dam as I trembled […]
While heading to the dressing room before the final whistle during the match between Portugal and Serbia, Ronaldo angrily threw down his armband near the touchline
A charity group which is trying to collect money for the surgery of a 6-month-old boy from Serbia with spinal muscular atrophy got the armband from a stadium worker who picked it up after the match.
