"thalassemia"

The 4th GANSID Congress 2026 concluded after three days of discussions on inherited blood disorders. Delegates from 23 countries examined prevention, early diagnosis, equitable healthcare access, bone marrow transplant assistance and collaborative approaches to improving patient care and long-term outcomes.

A Hyderabad-based delivery executive and cab driver Danala Arya has been taking the responsibility of the final rites of unclaimed and orphaned deceased bodies in Hyderabad for more than a decade. So far, he has performed the last rites of over 400 deceased persons.

UK resident Ajay Gandhi, who has lived with thalassemia major for decades, shared his life journey with young patients and parents at the TSCS in Hyderabad. He spoke about treatment, family support and perseverance while encouraging patients to pursue their dreams.

Thalassemia & Sickle Cell Society president Dr Chandrakant Agrawal and senior vice-president Ratnavali Kottapalli have been honoured with the Indian Humanitarian Award for their contributions to healthcare, voluntary blood donation, patient welfare, community development and awareness about blood disorders.

The Thalassemia and Sickle Cell Society (TSCS) is exploring ways to bring gene therapy access to patients in India. A delegation visited Thailand and other countries to study treatment protocols, infrastructure and collaboration opportunities with global experts

Hyderabad will host the Asian Thalassemia Conclave (ATC) on January 10–11, bringing together medical experts, policymakers, NGOs and patient groups from across Asia to deliberate on strategies to combat thalassemia, a preventable genetic blood disorder.

Thalassemia patient groups have welcomed the introduction of the National Blood Transfusion Bill, 2025, calling it a crucial step toward safer and regulated blood services. They urged Parliament to pass the legislation swiftly to improve safety, accountability and patient outcomes nationwide

In a commendable show of public service, sixty forest department staffers in Kumram Bheem Asifabad donated blood to support patients with thalassemia and sickle cell disease.

In Mancherial, members of the Northern Power Distribution Company Limited (NPDCL) Joint Action Committee participated in a blood donation camp, contributing 100 units to support patients suffering from thalassemia and sickle cell disease.

MS Education Academy was honoured by the Thalassemia Sickle Cell Society for offering free education to students with Thalassemia. The initiative supports inclusive learning through MS Creative School, Junior, and Degree Colleges, helping empower children with this genetic blood disorder

A panel discussion on "Thalassemia and Sickle Cell Anemia – Diagnosis and Management", was led by Dr. Suman Jain, Secretary, TSCS, Ratnavalli Kotapalli, vice-president, TSCS and Dr. K Saroja, Medical Officer, TSCS

"Reaffirming India's commitment to the Neighbourhood First Policy, India sends assistance consisting of medicines and vaccines for patients with Thalassemia and Sickle Cell Disease worth $2 million, responding to a request from Nepal," Randhir Jaiswal, Official spokesperson of the Ministry of External Affairs, posted on X.

Kamala Hospital and Research Centre for Thalassemia and Sickle Cell Disease, run by TSCS was designated as key Thalassaemia International Federation (TIF) Collaborating Centres in India

This disturbing trend was discovered when government officials investigated the blood samples of 6.96 lakh tribals from 14 tribal-dominant districts of the State for the third time

According to research studies and demographic surveys by the Union Ministry of Tribal Affairs and genetic researchers, sickle cell disease is widespread in many tribal groups of India, especially among Dravidian and pre-Dravidian tribes inhabiting malaria endemic regions

The camp at Suraj Bhawan in Ghasi Bazaar Market was aimed at providing vital support to individuals suffering from the condition

A majority of the 2, 53, 397 free blood transfusions that were taken-up by the Society were meant for nearly 4, 000 Thalassemic children from Hyderabad and districts, who needy regular blood transfusions for survival

World Thalassemia Day is observed every year on May 8 to raise awareness about the disease.

A total of 1,050 volunteers came forward to donate blood during the camp, which was also attended by Akbaruddin Owaisi, MLA Chandrayangutta

Srinivas said that 40 lakh persons in the country were waiting to undergo cornea, while victims of road accidents need blood